This is the story about the life of a woman changed forever by breast cancer.
This is my story.
From the beginning I have described this as a journey through rooms. Rooms that the Lord has gone before and prepared for me...Rooms in which I am never alone.


Why I write this blog...

To start afresh ...with a blog that shows the inside of my heart more...Who I am as a [real] person, a Christian woman, uniquely created by an Awesome God. This blog will mostly be about my life with breast cancer, anxiety, depression, and agoraphobia. Though these diseases do not define me, they are a part of my reality...& part of my life. I once said that I would not make 'My Heart's Home' all about cancer...and I found that hard not to do... since cancer became an uninvited, unwelcome guest in my life who threatened to take over unless I gave it a place and set some boundaries. Attempting to ignore its existence only gave it more power to wreak havoc as it threatened to dismantle the interior of my life while I struggled to keep it hidden in the shadows. So here I am writing this new blog.

But everything exposed by the light becomes visible and everything that is illuminated becomes a light. Ephesians 5:13
Wow...According to that scripture (which is speaking of evil things that are kept in secret) If I expose cancer by dragging its sorry butt out from the darkness where it lurks, and bring it out into the Light where we can take a good look at it...Shining the Light of Christ on it......then it can produce good things...right living and truth! ( vs.9)
8) In the past you were full of darkness, but now you are full of light in the Lord. So live like children who belong to the light. 9) This light produces every kind of goodness, right living, and truth..
14) Yes, everything is made clear by the light. This is why we say,“Wake up, you who are sleeping! Rise from death,and Christ will shine on you.”Ephesians 5: 8-14

Writing about my life gives me purpose...

Romans 8:28... And we know that in all things God works for the good of those who love him, who have been called according to his purpose.
All things...not just the good things, the fun things, the nice things in life...If we love God and are living according to his purpose...everything will work out for our good...even cancer.
I hope this blog will reflect more of the true me, as I try to live my life in the light of Christ...I am not going to attempt to fit into any clique, I have never been able to fit into cliques anyway, and always seemed to lose a piece of myself while trying. Just like the human heart that beats within my chest, this blog is a part of me...It has inner chambers or rooms where few have entered in. This is where the truth resides...no phony facade, nothing artificial added ....Only the truth will be revealed here as I attempt to shine the light of Christ into every darkened corner in my life. So feel free to join me as we take a tour through the rooms of my life...but be forewarned: I tend to re-arrange a lot!

May you find many blessings and much love here...& always remember that we are... ~NEVER FORSAKEN~

Monday, October 25, 2021


 

Today I go for my routine echo cardiogram. One of the medications I'm on can damage the heart valves, so I must have my heart checked every three months. So far my heart is very healthy. Its been nearly four years now.

Last night we visited our daughter and her husband and our little granddaughter. I love getting down on the floor and playing with my two year old granddaughter! I can tell already that we are very alike in many ways. Later this week we will travel out of state to visit one of our other daughters and her husband and our other (youngest) two year old granddaughter also!

My oncologist is concerned about my state of mind. She worries that the depression may actually shorten my life. She says she's seen it happen before with another patient who was in remission until another doctor reminded him that his cancer would kill him in a very short time. She said as soon as that period of time came up, the man passed away. He was doing very well until then.

She told me that everything she is doing for me is about 30% of my success, and the other 70% is me!

My depression is caused by so many different things. Of course the pandemic, the loss of bodily function, loneliness and frustration. But the biggest thing for me is all the regrets about my past. Not so much things that other people have done to hurt me, but the hurtful things I've done to others. My life-evaluation is not looking very bright these days and I have little to no energy or resources to use to try and make things right. To be brutally honest, looking back, I really don't like the person I was and I feel like I am very different now from how I was back then! 

No matter how much we change, there are times when we must live with the consequences of our past actions and attitudes. This is not an easy thing to realize. Even for a Christian..maybe especially for a Christian, as we are held more responsible to how other people see us. We are to be examples of Christ..That is the very definition of "Christian". And I hate to admit this, but the truth is my idea of what Christ-likeness is was not always a very good one. I have been so judgemental at times that I became filled with anger and pushed people far away. I often forgot to look first at the beam in my own eye! 

I think a lot of this regret started to really surface when my best friend of more than two decades passed away in May of this year. We shared so many burdens. I now have no close friend. I have my husband and children and of course the Lord. But another woman of my generation to talk with was truly a gift, and you cannot just replace a person. I could find a new friend, but with the disease I'm living with there simply is no time left to forge a close friendship again. 

My husband is a great person, but he has different interests than I do and he works a lot. He comes home tired and just wants (needs) to relax in his own little world after a long day at work. I am blessed with a daughter that likes to play a video game with me every night. We both love horses so we share that love while spending a few hours together online in the game.

I suppose I am very blessed and have it better than many people. I really should not feel sorry for myself at all..but like I said before, it is about regret over my own past actions and attitudes that I am sorry for..not as much about what hurt I have suffered at the hand of someone else.

So today I will have my heart examined..and maybe this is why I am writing about the examination of my inner-heart as well. That is where the real damage is. I know God forgives. And for that I am truly thankful.

Blessings & Love

and remember, we are...

~Never Forsaken~

Friday, October 22, 2021

Not a pretty Ribbon

 

This is October. The month of PINK. Although pretty much every person on the planet is aware of what breast cancer is by now, and can recognize the iconic pink ribbon,very few have ever seen nor do they recognize the ribbon that was designed specifically for the only type of breast cancer that actually kills its victims. The cancer that started in the breast, but has spread also to other parts of the body, most commonly the liver, lungs, bones and brain. This cancer is called Metastatic breast cancer and it is fatal. There is no cure.

A few years ago my friend and I were standing in line in a bank. It was October and there were posters adorned with pink lettering saying "Save the boobies!" Above the posters were various stuffed pink bras hanging. This was a message intended to educate people on the importance of finding breast cancer early as to avoid needing a mastectomy..or that's what I'm guessing it meant? I also remember the poor Amish man who was standing in line behind us. I felt embarrassed enough for the both of us. 

As a breast cancer patient (for life)..I felt a bit offended at this message. I told my friend that it is not as much about "saving the boobies" as it is about saving the lungs, the liver, the bones and especially the brain! That should be the poster! Lord knows a woman can live a reasonably normal life without boobies. But, well we need our lungs and brain and other organs way more.

So, that is my little rant for now. I have so much more that I could say on the subject, but it's better if I don't.

Instead I'll talk about my brain for a minute. I had a brain scan last week, and although there is no cancer in my brain, I do have something called a 'cavernous malformation' on the right thalamus. Its just over 1 cm..and it is inactive, or has "been resolved" since my last scan in 2018, That is good news, but this lesion may also be why I'm having so many nerve issues. We don't know and we are not gonna go poking around deep inside my brain for the answers. My nerve tests showed low normal results. It is assumed that I have something called 'Small Fiber Sensory Neuropathy', since that does not show up in either of the tests that were given me. 

It's a wait and see if it ( my symptoms) improve or not with more time.

God is in control and God is good.

This post was rather different than my normal post probably because it is 4 am and I have not slept yet.

I don't think anyone reads this blog anymore but that's alright, I write it mostly for me, as a way to sort through, or process the things in my life.

But to anyone who does happen across this post...

Blessings & Love

and remember, we are...

~Never Forsaken~






 It's August 2021! It's been more than a year since I've posted..I have made attempts to post, written here and there, but just never felt compelled to hit that publish button.

What a wild year it has been too..Well, for our family it's been a wild couple of years. 

I'll begin with the most relevant event(s)..June 2, 2019..I attended my granddaughter (Erna's) birth! I was one of the first to see her little face (She was born facing up..what the nurses call "sunny-side-up") and after that very long night in which we actually slept in the hospital parking lot for a couple of hours, we returned home and got a text "Mom and dad, I'm ok but in the hospital getting my appendix removed" This, from our oldest daughter..I had my bags packed already intending to stay a few days with our youngest who had just given birth, so I had a choice to make. It was only appendix removal, a simple operation, but our oldest daughter had a surgery some time before this and had trouble waking up from the anesthetic..so..I was going to go be with her about two hundred miles away..THEN the phone rings" "I'm in the hospital..It's pretty bad, can you come..I'm scared!" Now this was our middle daughter who was seven months pregnant and seriously ill with a new diagnosis of Ulcerative Colitis, and her blood (hemoglobin) was dangerously low so they were admitting her! My bags were packed..I needed to assess which child needed me the most (I was basically doing triage in my head) I drove myself more than four hundred miles away, a five hour trip..I stayed with my daughter three nights in the hospital, and a couple weeks after. 

This was only months after I had completed several rounds of heavy duty chemo followed by 33 rounds of radiation. And it was during the end of that treatment when I went to take care of our oldest daughter after she had her digestive system re sectioned. 

Two months after our middle daughter's hospital stay, it was time to go back to be with her after the birth of our youngest granddaughter Olivia..Whom I also got to meet as soon as she was born on August 22nd! 

I like to tell this whole story because of the need to have and keep hope..Both these granddaughters were surprise babies..both were miracles..One was thought to have been a miscarriage..but she struggled to survive in the womb..and is perfectly healthy since birth!..The other baby's parents were told that they could never conceive, but God had other plans!  

The third miracle here, is me. 

Just one year prior, these three daughters and my husband were discussing the possibility of needing to care for me, as we were planning for the very real possibility of my becoming too ill to care for myself while my husband worked.

Well, I guess God had other plans too. Although I am heartbroken that one of my daughters has a very serious incurable disease, I know she is a fighter like me..and so is her little daughter! They will be strong no matter what comes their way in life.

I was allowed to be here to see my youngest daughter's dream of becoming a mother came true! And she is an excellent mother too.

And, although I have been through a lot myself..I feel so blessed to be given the strength to be there for all my children despite the belief that I would not live very long. I have been able to care for myself while my husband works full time (even lots of overtime)..And the cancer remains in remission. They still say there is no cure, but you can call it whatever you want..I am still here, still working hard around the home, and still hopeful about tomorrow!

What comes next for me? Well, I am seeing a neurologist for tests on all four limbs. It appears I have no reflexes..none! I get discouraged some days when I can do very little because of the pain, weakness, loss of sleep..etc..but, I remain hopeful! God is still bigger than this. My hands are strong despite their lack of sensation, so that is good! In fact, during my exam I cracked the doctor's knuckles when he asked me to squeeze, haha!

I give the credit for this to my nightly playing an online game with my daughter. We have so much fun riding horses around a vast old western world collecting valuables to sell, or sedating animals to study, and exploring nature..sometimes shooting bad guys who are trying to kill us and deadly predators who are trying to eat us! My hands and fingers stay nimble from using the controller..and my mind stays off the pain. But the biggest thing is the enjoyment we both get together!

But it's not been all fun and games lately. My dear old oncologist passed away at the end of April. I had not seen him in over a year since his office closed down and I had to see a new doctor. And then my very best friend of over 25 years passed away on May 10th. I was devastated. yes, she is with our Lord..She's HOME! But..I lost the one person (usually the first person) that I could just pick up the phone and talk my heart out to.I  miss her every day. I'm happy for her..sad for me. I fell into a deep depression afterward, and I am only now coming out from that darkness. Other serious things happened within our little family unit..private things that plunged me even deeper. I am still grieving the death of our dear Buddy boy..our beloved hound dog who made our lives better throughout a long period of sickness..he was my comfort. Yes, we have our little Oliver..He is the sweetest little dog ever! I am so thankful I rescued him only eight months before Bud passed..such a comfort for me especially. He and I are inseparable!

Oliver's claws were long here because we were awaiting his vet appointment where he was going to get them trimmed for free while they cleaned his teeth.


 

And during the early months of the pandemic, I bought four chicks from the feed store. They are now fully fledged hens with big personalities! They were meant for eggs..but we get so much more out of them as, besides providing us the delicious eggs, they make us laugh..they also keep me busy!

 

In fact, just this weekend we finished building their new run and setting up the new coop!  

Well, That's about it!

Thank you for reading my extra long post.

Blessings & Love-and always remember, we are...

NEVER FORSAKEN!