So I deleted this blog once; (and accidentally deleted my main blog in the process!)....I thought it was unnecessary to have another blog, one dedicated to the cancer...I was wrong.
I found myself wanting to write about the struggles associated with having cancer in my daily life and I considered posting about it on my main blog, but whenever I wanted to write about it on there I found I was having trouble doing so. I also thought about posting on the forum of a Christian Simmers website that I am a member of, it just did not seem to be the right place, even though I have forged some really good friendships with some people with whom I feel I can share so much...But I just could not bring myself to start a new thread all about me and this disease.
So here I am.
I just got off the phone with the nurse navigator (Jessica)whom I hadn't spoke with in some time.
She asked about how I was doing, and I told her that physically I was doing really well, but I told her about how mentally I am still coping with the disease.
I have told my oncologist (Dr. Hurtubise) That I wish I was more like some of his patients whom I have met who don't want to know about their disease...and I respect their decision, but that is just not me.
I have done my research and I now know that this type of breast cancer (Her2+) has a higher risk of recurrence, and that usually manifests in the brain...I also told him that I am following the latest studies of a new drug that can actually penetrate the BBB (Blood Brain Barrier)...called ANG1005.
Whenever I mention recurrence, he always tells me not to worry about that, and that my chances are low, and not to develop a brain met just to test out that drug lol!
But I do worry...not as much about dying as you might think, but of losing my mind (literally) to this disease!
Just getting older, never mind having a potentially fatal disease is difficult to adjust to...I have lost my breasts, I've lost much of my agility because of vertigo and arthritis... [Osteoarthritis was diagnosed in my spine at age 40, though it started much sooner than that.]
So my brain is all I have left...my thoughts, my words, my passions and ability to communicate are the most important things to me...even more now.
Just in this past week I have learned of two women who died from cancer...neither of them had breast cancer, but that does not matter...it brings it home to me, the seriousness of this illness...And though I do believe that at the moment I no longer have cancer in my body, that does not erase the fact that it is a specter that looms over me, and will for the rest of my life now.
As I told Jessica, it is a matter of faith...reining in those thoughts that come up each day...faith in God sustains me...but i also have faith in what human beings can do if they are willing and able...as that also comes from God as well!
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